Thursday, August 11, 2016

Goverment in your Doctors office

I recently wrote a letter to NH Board of Medicine, since I cannot get any relief from chronic pain after haveing varios levels of relief for over 10 yrs, w/o issue. as follows.....
Sirs,
   I was involved in a workplace trauma a long while back but still suffer from sever acute Phantom pain, Episodes lasting from 1-2hrs to as long as 18-24hrs, where I scream every 5 -25minutes. For this pain I have been on rather large doses of various medications some involving opiods. While I have reduced over all intake I realize none of these medications are very good for me or my kidneys and other organs. I have stopped before withdrawal was nothing compared to the pain that followed, and as I said reduced a great deal with my physicians help, but the trade off is a far less quality of life.
  I will spare you the great details of just how miserable life can be as a high level double amputee,(No legs at all) confined to a wheelchair in constant chronic pain punctuated with periods of intense phantom pain. I also will tell you I completely sympathize with trying to end the opiod crisis, and three my friends children have died from this epidemic. Last I can sadly say I don't have any solution on how to end this tragedy. What I can't understand is why, thinking if we stop doctors from prescribing pain medication to patients who need relief from a life of chronic agony, that will end street drug use? They are not the same issues.
  Now, I become a victim. I cannot find any doctor that can continue prescribing relief for my pain, and as consequence, my life has been reduced to being a person who lies in bed 18hrs a day, I try but in pain, can't do much else. I was active. Took care of myself. Oil Painted. Was active in the community. Rode my handcycle. Now, the Government is sitting in my doctors office, telling them what they can and can't do to help me. Many Doctors what too help, but explain, they simply can't. I  thought THEY went to school, Paid their tuition, and knew what was best for the PATIENT, but now it seems the Government knows what's best.
Where's your degree?
  I am so screwed with this pain. and if I am......how many, countless others are too?
Grandmothers, Fathers, friends and neighbors. You might not even know it, you will only wonder why you
 haven't seen them lately. Until it hits home.
 Just who do you think your helping? The numbers don't add up. Deaths have NOT gone down.
What do I have to do now? Go to the streets for pain relief? That makes as much sense as governing Doctors.
Yes, there are bad doctors. I know because I had them. For the most part, there's many good educated doctors.
Treated me with respect and dignity, Explained what could go wrong with opiods, but understood, some pain
 has to be dealt with harsher than others. I didn't "Plan" this. I wish I never went to work that day. but the pain doesn't care.
1% off all amputees are "Double" amputees. 1% of that 1% are high level double amputees. Bi-lateral Hip dis-articulation.
Did I ever want to know what that means? No. The point is, for the most part, you're doing the right thing. But how can
you lump all pain patients into one group of, "No more than 100units for no longer than 90 days"
Not like my legs are going to grow back....or this pain will go away....for 85% amputees, it does eventually.
I been waiting and praying and screaming...but it doesn't stop. It just goes from one leg to the other.
EVERY F/N DAY. It is sickening. who would want to live like this? This is not living, merely existing.
if that some days.
Any questions? Feel free to write me back. I'm not doing anything.

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