Almost there!!!

Why write a blog? cause your so smart and you want to help people? Haa-Ha. of maybe just to get it all out? Well, for me it's chronicling a problem in America today... for the disabled. Primarily the war on drugs and opioids.

 so for no particular reason I will tell you what I learned this thanksgiving...

Folks,

   I am writing this to my PA-C (latest henchmen) at GSPA, because I was completely unable to make my last appointment. In fact, I don't go anywhere. I can't

Sunday, rough night, not the worse, but I am a little sore from the contractions my body goes thru with each electrical shock. Life goes on. I will call early Monday morning to set up a time for a visit... or I should say, "As soon as I am able". While I understand the need to reduce everybody's pain medication, (for some reason), I have to say, for me, it's greatly diminished the quality of life, and more recently taken effect on my physical abilities. This Thanksgiving people asked how much weight I lost, and without saying as much, wondered about my physical health. Why are we as a society so afraid to approach the subject of death? Clearly, I understood they were also as worried about how poorly I look and am doing now that pain is a daily combatant. Like a dying dog, I don't run and play anymore. I just lie in bed, and now the consequences are obvious to anyone who seen my decline in this past year, See you soon, God willing. Edward Keith

I did see a few people this thanksgiving, and didn't like anything I heard! THIS, the newest attack on pain patients, I heard last week.... Bob, a friend who is disabled, been on pain meds for years and was active. He went thru this "REDUCE PAIN PATIENTS MEDICATION" approximately a year before me. and now...after his life has become less manageable (after med reductions), and he is now housebound...they did a wellness check.   Guess what?

  The powers that be, are now trying to section him!!!   Doctors are really going out of their way to help patients these days!

     My Uncle tells me, "Do NOT involve any of these so-called Helper bees, ie, doctors lawyers' police, etc. because they will only make you miserable. His wife, 94 yrs. old... never sees a doctor, and I am sure she is not in perfect health, but she is still alive...and most of all, happy.

   I am NOT happy.

 and here's the sad part.... the very few, who legitimately do want to help, cannot. Their hands are tied. Even with their best efforts, there is only so much a person can do with such powerful opposition.

   On that bombshell, I bid you all good day, I have much to consider,

 thanks for trying, 

And that is what I learned... so if you are disabled>or know someone, be careful what you say. I will be used to incarcerate you. even if you are being told, "We're here to help you"

NOT DEAD YET! surprise

 Hello, I am writing this in a mental fog this afternoon, after 13hrs of sleepless sever lightening strike pain, but I feel I must say it, because there are people who are not in touch with my reality...in fact some believe I "Exaggerate" my pain.  Including some medical professionals. I sent this letter to my current ARPN, who has once again reduced my medications to in fact, less than half. 

Friday. I began experiencing breakthrough pain shortly after our last meeting, so when I returned home, I went immediately to bed and rested. The pain intensified at 9pm.My Rt kneecap was assaulted with sharp electrical shocks three zaps in rapid succession, every 4 seconds. This continued for 13hrs, and finally, I got three hours of sleep. I am physically and emotionally wiped out, yet I have to eat and attend my responsibilities. I hoped this would have reduced in the past 90+ days, but that is not the case. PLEASE ask around for any alternative pain abatement protocol. This was a new high having THREE break-thru episodes lasting over ten hours each in one week, and frankly each time I worry if it will be the last time. It really is that horrific Please help me.

   well, it is a seemingly beautiful day, I had plans. I am very hungry but physically limited to just how well I can perform daily living tasks. I know I cannot take any unnecessary chances as I am alone here, and cannot afford a dangerous fall. Of course, I will live, until I can't, but know this recent change to my health care has had enormous negative consequences.

     PLEASE, any help in finding a medical professional or care team that can take me off the strings of medical puppetry (ineffective medications), and restore a quality of life to where I can get back to being a productive valued member of society...give my live restored meaning....do try. I work on this whenever time allows, but at 4-6hrs daily, I am falling far behind on even the most basic of human needs we take advantage of, believe me, just being able to do want you need, when you need to do it is so underrated. I cannot even make a small meal.

Ed K

marginalized

patient

I am sure there is something that can be done. but who will step up?