Thursday, August 11, 2016

Goverment in your Doctors office

I recently wrote a letter to NH Board of Medicine, since I cannot get any relief from chronic pain after haveing varios levels of relief for over 10 yrs, w/o issue. as follows.....
Sirs,
   I was involved in a workplace trauma a long while back but still suffer from sever acute Phantom pain, Episodes lasting from 1-2hrs to as long as 18-24hrs, where I scream every 5 -25minutes. For this pain I have been on rather large doses of various medications some involving opiods. While I have reduced over all intake I realize none of these medications are very good for me or my kidneys and other organs. I have stopped before withdrawal was nothing compared to the pain that followed, and as I said reduced a great deal with my physicians help, but the trade off is a far less quality of life.
  I will spare you the great details of just how miserable life can be as a high level double amputee,(No legs at all) confined to a wheelchair in constant chronic pain punctuated with periods of intense phantom pain. I also will tell you I completely sympathize with trying to end the opiod crisis, and three my friends children have died from this epidemic. Last I can sadly say I don't have any solution on how to end this tragedy. What I can't understand is why, thinking if we stop doctors from prescribing pain medication to patients who need relief from a life of chronic agony, that will end street drug use? They are not the same issues.
  Now, I become a victim. I cannot find any doctor that can continue prescribing relief for my pain, and as consequence, my life has been reduced to being a person who lies in bed 18hrs a day, I try but in pain, can't do much else. I was active. Took care of myself. Oil Painted. Was active in the community. Rode my handcycle. Now, the Government is sitting in my doctors office, telling them what they can and can't do to help me. Many Doctors what too help, but explain, they simply can't. I  thought THEY went to school, Paid their tuition, and knew what was best for the PATIENT, but now it seems the Government knows what's best.
Where's your degree?
  I am so screwed with this pain. and if I am......how many, countless others are too?
Grandmothers, Fathers, friends and neighbors. You might not even know it, you will only wonder why you
 haven't seen them lately. Until it hits home.
 Just who do you think your helping? The numbers don't add up. Deaths have NOT gone down.
What do I have to do now? Go to the streets for pain relief? That makes as much sense as governing Doctors.
Yes, there are bad doctors. I know because I had them. For the most part, there's many good educated doctors.
Treated me with respect and dignity, Explained what could go wrong with opiods, but understood, some pain
 has to be dealt with harsher than others. I didn't "Plan" this. I wish I never went to work that day. but the pain doesn't care.
1% off all amputees are "Double" amputees. 1% of that 1% are high level double amputees. Bi-lateral Hip dis-articulation.
Did I ever want to know what that means? No. The point is, for the most part, you're doing the right thing. But how can
you lump all pain patients into one group of, "No more than 100units for no longer than 90 days"
Not like my legs are going to grow back....or this pain will go away....for 85% amputees, it does eventually.
I been waiting and praying and screaming...but it doesn't stop. It just goes from one leg to the other.
EVERY F/N DAY. It is sickening. who would want to live like this? This is not living, merely existing.
if that some days.
Any questions? Feel free to write me back. I'm not doing anything.

Monday, August 8, 2016

Goverment in the Doctors office

I been screaming in pain for the past four plus hours. This has been a regular thing since my needed pain medication has been reduced to nearly nothing.
  My dog is very old ,blind and deaf. Today she went to the back yard pen and couldn't find her way back to the doggy door.
  A lot of people say I should euthanize her, since she can run and have a quality of life, like a dog deserves. I have had many dogs, and they all die. They will let you know when it's "Time". It never makes it any easier. But for now, she eats, poops outside and isn't in any pain.
 That's the real test. When she is in pain, I will know, and I will not let her suffer unnecessarily. She is 18yrs old, so it's not a matter of "Fixing her". She is simply old.
    Did you know a person can be charged with cruelty to animals? and receive a stiff fine and possibly jail time? if you keep a dog alive when it is in pain?

  Which is what had me thinking. I am in severe pain right now. I am, most every other night, screaming from severe, stabbing, shooting pain. Should I be euthanized? Why shouldn't a Doctor be fined or imprisoned for making me live in unnecessary pain?
  If I were a dog, I would have been euthanized a while ago. A LONG while ago. Ya, they make wheelchairs for dogs, Similar to the one I am confined too. Yes, I have shit in the house several times. Also, my apatite isn't even as good as my dogs, And there is no doubt I am in critical pain daily.  
     So why am I not reviving medical treatment and am being made to stay alive in miserable pain? Why am I not being treated as well as we treat our family pets? And why is nobody held accountable for this lack of treatment I receive?
   I have plenty of "Agencies" purported to have my best health as their priority interest, yet, here I am screaming, for five hours now. With nothing to treat this pain. This is bullshit! really.
   And why I am the only person who can find a doctor? get an appointment? or take care of my needs? What? with all these agencies, nobody has to do shit to help me overcome the bureaucracy of red tape. All I get is the: what they can't do for me, What about what they can do for me? Tell me I can't get an appointment without my medical records? (I did, twice) Tell me, "Nobody can prescribe that amount of medication". When that much and more hasn't been an issue for over ten years, and most recently, a Doctor told me, "...It's not an unreasonable amount of medication, considering..."And, "We can send someone over to do very little for you...". (except take up my time) Honestly. the list of what they can't do, is longer than what they can.

   If I were a dog, I would crawl off and die, except, a dog would be missed.

Now, I have appointments and obligations tomorrow, as most people do, But I am expected to be on point...even with little to no sleep the night before, I am also expected to call the doctors office 24hrs prior to missing any appointment. Or receive a bill.
 let me ask, How the hell am I suppose to predict pain? and I will be up all night the day before an appointment. And these stupid doctors make the appointment the day my prescription runs out.
 So, I better not run short or out, and miss my appointment, Because as if my life
isn't already now.......
    I'd be screwed!